The lived experiences of stroke caregivers three months after discharge of patients from rehabilitation hospital.

ABSTRACT Aim: Caregiving of stroke patients has a long trajectory and the experiences of caregivers may change over time. Few studies have described the experience of stroke caregivers three months after discharge of patients from rehabilitation hospitals. This study describes the experience of stroke caregivers three months after patients are discharged home from a rehabilitation hospital. Method: phenomenological study Results: Seven themes emerged from analysis: deeply-changed life; re-appreciation of the relationship with patient and family members; increased workload; difficulties in getting support from the national health-care system; lack of preparation for caregiving; difficulties in coordinating caregiving, family and personal life; relief after patient’s recovery. Conclusion: A comprehensive understanding of stroke caregivers’ experience during the three months after patient discharge can support the development of educational interventions aimed at improving the caregiver preparation for the care of patients. Parole chiave: Caregivers, stroke, phenomenology.